Workshop presented by Dr. Neil Myburgh (my notes from the workshop)

• Research and clinical practice should be designed to respect the dignity of patients / participants.
• To what extent are human rights in health still an issue in South Africa?
• Justice in the distribution of resources is a huge problem in South Africa. This is linked to inequity. How does policy / practice influence this?
• Consider buying ”An ambulance of the wrong colour” - may be useful for creating cases / examples to discuss in class
• How do personal value systems affect the resolution of ethical dilemmas?
• Dual loyalty challenges the primary loyalty to the patient
• Download guidelines for ethical practice in research from SAMRC, HPCSA, NIH, CIOMS
• ”deontological” - relating to rights and duties
• “consequentialism” = utilitarianism (opposed to a rights-based approach)
• Cultural context is important in research
• As researchers we must increase the emphasis on ethics in research, especially as it relates to the exploitation of vulnerable groups
• Why is most research (especially drug trials) conducted on populations with diseases that are of interest to developed nations (e.g. hypertension)? Where is the research for malaria / diarrhea?
• Review Emmanuel et al benchmarks for the “core” of research. Described as the common ground between biomedical and social sciences